Showing posts with label st. mikes. Show all posts
Showing posts with label st. mikes. Show all posts

Making It Official

Tuesday April 19

After weeks of flirting and flip-flopping, transplant and I are hand-in-hand: It's official. Today I signed the dotted line and, following a few inappropriate jokes about diseased lungs and death, was listed. Let the wait begin!

It was quite the day of build-up, we arrived at Toronto General around 11:30 and didn't see my Coordinator until around 12:30. We briefly chatted about where to go once I receive the call, travel restrictions (I cannot travel more than 2.5 hours away) and activated my pager. I then briefly saw a man about drawing my blood (they always seem to get you!) and hurried along to meet the surgeon, then we waited... and waited... and waited... and apparently set a new record for longest wait time to meet with the surgeon (2 hours, yay us?). I ended up reading through my entire chart by the time my name was called. P.S. Mildly fatty liver? Fatty pancreas? Pfffft! I'm deeply offended.

Free!

I am officially 'free' today! I had my picc line pulled (which is like a giant iv--I had left it in to make sure my infection was completely gone). Which means I can finally shower, stretch and wear a jacket with ease!

My pfts dropped slightly from 27% (.80 L) to 25% (.73 L), but I'm feeling great and have no infection symptoms, so we decided I was done with IVs. Apparently I'm a little bit of a wheezebag,  so we've increased my dose of Oxeze (like a ventolin puffer) to help me out. We're hoping the slight drop in pfts is just due to leftover inflammation from the infection.

I also have to start eating more (still). I somehow lost 1 kg in 2 weeks...gross. Some people would be happy to have their weight just melt away with ease, but I'm not so impressed. Haagen Daz round II, here I come!