Showing posts with label donation. Show all posts
Showing posts with label donation. Show all posts

Media Monday: Teen Gives Life in Death

I was going to publish something completely different tonight. But I heard this story on the news and then came across this article (extracted version below). It emphasizes two points: one, we never know when we have seen our last sunrise, had our last lunch with a friend or watched our last favourite comedy. And two, organ donation is very real. Lungs do not come from "Lung Mart"--though that would be convenient. Rather, they come from living, breathing, people who had a lot to offer the world and were taken from us prematurely. Thankfully, donors and their loved ones are strong and selfless enough to make the decision to donate their organs so that others can continue a legacy for two.

Travis Cooper

The lives of five people were saved Thursday by Travis Cooper, a LaSalle 18-year-old who crashed his motorcycle in London Tuesday and was kept on life support until his organs were harvested for transplant to people languishing on waiting lists.

“His heart went to a young girl, his lungs went to a young man, his liver to a fellow, one kidney got a person off dialysis and another kidney got another person off dialysis,” Cooper’s mother Jennifer Varga recounted Thursday. The surgery to remove his organs started at 7:30 p.m. Wednesday and ended at 3 a.m. Thursday.

Two years ago, Varga, a health professional, had discussed signing an organ donor card with Cooper and his brother Tyler, now 19. “I told them it’s the greatest gift you can give,” and both signed, she said.

The donor’s family isn’t told the identity of the recipients, who are from all over the province.

The fact that her son’s death resulted in life-saving organs for five people provides some solace for Varga. Her son, she said, was: an honour roll student in high school; an avid athlete who played football, hockey, baseball and soccer; a bass player in a local band called Chainsaw Armada; a volunteer who was great with children and the elderly; and a “mover” who had spent his high school years at various locations.

He graduated from Sandwich Secondary in LaSalle, but also went to Massey in South Windsor, and lived for short periods in Texas (where Varga was working for a time) and Florida, where his father Sherwood Cooper Jr. is a veterinarian.

And he loved his motorcycle, his mom said.

“He would ride it everywhere.”

The accident, she said, happened Tuesday afternoon on Cooper’s first day at Fanshawe College's architectural technology program in London. He had his classroom numbers scrawled on his hand and his laptop in his backpack at the time of the crash.

The Kawasaki motorcycle Cooper was riding collided with a car making a left turn, said London police Const. Amy Phillipo.

Witnesses told police the motorcycle was racing and weaving through traffic prior to the collision, The London Free Press reported.

While Cooper was wearing a helmet, he sustained serious injuries after he was thrown from the bike.

He was taken to University Hospital in London. His mother said the staff in the hospital’s intensive care unit were “amazing” through the ordeal.

Varga said she was told that just before the accident, her son was going quickly and had changed lanes, which may have meant the motorist didn’t see him coming as she made the left turn.

Varga also said that it’s important for people to know that a helmet doesn’t protect you in such a severe crash. Although her son’s helmet wasn’t damaged in any way, his brain was “totally destroyed.”

Scott Scantlebury, the spokesman for the Greater Essex County District School Board, said a number of staff at Sandwich Secondary knew Cooper, “and we’ve had counsellors available at the high school.”

Funeral arrangements are being handled by Families First Funeral Home.

Visitation will take place at their Dougall Avenue chapel on Saturday from 2-5 p.m. and 7-9 p.m.

The funeral will be held Sunday at 1 p.m. at Glenwood United Church at 1825 Grand Marais Rd. W.

His mother recalled that when her son was 15 and living with her in Texas, a 17-year-old boy collapsed on a gym floor and went into cardiac arrest. Cooper’s actions resulted in the boy — whose heart stopped on three separate occasions while they waited 25 minutes for paramedics — surviving.

On Thursday, her son “gave again,” when his organs were donated, said Varga.

“That’s six people he’s helped along the way.”

Day Two: Groggy, Information-packed and Sprint-worthy

I woke up a little groggy today, only got about 5 hours of broken sleep. I tried to be as quiet as possible as I did my mask at 6:30 (my mom, dad and sister were still sleeping in our hotel room). We headed over to TGH at 7:30 for an echocardiogram (echo), which is basically just an ultrasound of your heart. This will show how well my heart pumps blood and provides a closer look at how the valves function. It is a really easy test; all I do is lie there while the technician places a wand on my chest. He explained everything I was seeing and hearing on the monitor, so I was getting my education… even if I just pretended to understand some things…

Since I was in and out pretty fast, we went back to the hotel room to meet my sister and go out for breakfast. Our next appointment was with the Transplant Coordinator nurse, Michelle. She told us a lot of stuff that we had already researched and knew, but thankfully we had because there was A LOT of information. She gave me a huge blue book that tells you exactly what to expect pre-tx, during tx and post-tx. It is even broken down into an hour-by-hour basis. To date, I have only read about 5 pages—I need digestible chunks of info and some of it is hard to chew.

A Glimpse Into the Future

Michelle told us that 90% of tx patients experience at least one of two complications: rejection or infection. So you have to expect that you WILL get rejection and infection. Rejection, because you are introducing something foreign to your body. For instance, when you get a splinter your body wants to attack and destroy and get it out of you. So, in order to avoid this type of assault on your brand new sparkly lungs, tx patients are put on immunosuppressants (medications that lower the immune system and ‘trick’ your body into accepting your new tenants) for the rest of their lives. Of course, without a strong immune system you are open to the next complication: infection.

Anyway, those are two complications that are to be expected. Along with a host of other complications that are tag-a-longs. In response to these complications there is a long list of combative medications, which can also lead to more complications! Mind you, looking at the list of medications, I have already been on some of them including the most evil of them—prednisone, which I have been on for most of my life already. So who knows?

The message of the meeting was basically this: Transplant is a treatment NOT a cure. This is what makes it difficult for a lot of people deciding whether or not to go on the list. Essentially you are trading one set of familiar problems for another set of unfamiliar problems.

The Verdict on Living Donors


We also asked about the possibility of living donors. It has not been done at TGH yet and it seems to be discouraged—rightfully so, because it is a huge decision with questionable ethics. With a living donor donation a lobe is taken from two separate donors, which are then placed into the recipient. Those two lobes become the recipients two lungs. The donors have to be a certain height taller than the recipient, which makes me an ideal candidate because I am tiny (it is usually done on people who are smaller or children). However, the donors will lose a percentage of their lung function permanently and are at risk for complications like infection. While I would feel just fine with 2 lobes (normal lungs have 5 lobes) because my body is adjusted to crappy lung function, the donors would feel pretty horrible because they are accustomed to full lung function. Also, unlike the liver, the lungs do not regenerate and grow back.

Donors would also have to undergo more rigorous testing than me and I would have to have five potential candidates PLUS caregivers/support people for the donors (they would only pick two donors of the five) and me. SO doesn’t look like living donation will be an option for me.

Other things I've learned…

People with Cystic Fibrosis are not allowed to hang out after tx, even if both of them have had a tx.

For those of you who don’t know, people with CF are not allowed to hang out because we grow bugs in our lungs that can be harmful to each other. We constantly go through great lengths to avoid each other, which is especially hard when we are in the hospital or at clinic at the same time. I will probably expand on this later.

All-in-all very informative meeting.

Test One, Two...

I only had two more tests after this meeting. One was a CT scan of my chest and sinuses. Really simple, you just lie there (again) and the machine talks to you in a robotic demanding voice (breath in, hold, breath). This test was soooo much easier than it was in January. In January I was panicking about holding my breath long enough (it feels like it is about 10 seconds?) but this time I had no problem.

The last test was a six-minute walk, which is exactly how it sounds. A physiotherapist will time you as you walk and then record how much ground you were able to cover in six minutes. I did this test before when I went for my consultation in May, only this time I used my oxygen (3 L on pulse. Pulse means it gives me oxygen when I breath in, rather than a constant flow) and wore running shoes instead of heels. This time I actually broke my record (which was already pretty decent) by 34 metres! I can now cover 529 metres in 6 minutes, which is amazing! Woo! (I usually will not be walking that fast though… my fast-walking/sprinter friends can dream on...)

I was really tired after the tests today… so I napped for about an hour when I got back to our hotel room. We went out for another nice dinner at the distillery district (got lost for about 30 mins first, thanks E for your help!), then went to a pub and had sangria (I have a test tomorrow that says I can’t have any caffeine for 24 hrs before, so I replaced caffeine with alcohol). Tomorrow doesn’t start until 12, so I will get my sleep-in!

P.S. Thanks to my sister for coming today even though it was her big 2-0.