Today, hopefully (and probably) is the last day I will have my PICC line in. Tomorrow I have clinic at 8:30 am sharp (the way I like it) and I will review my pfts and make sure everything is a-ok before getting this lovely contraption removed from my arm. Showering is about to get a whole lot easier.
In the meantime, I have improved immensley over the past week. It's quite shocking how much better you can feel after getting used to being 'ok' for so long. My treatment times don't take near as long (they were taking close to 2 hrs each before IVs... that's 6 hrs a day), I'm actually hungry a lot (and I can pack back a lot more food) and my energy is waaaaaaay up. This last point is particularily useful becuase I've been a busy gal. Not only am I still enjoying my internship at Canadian Family, but I'm also working on a fashion show fundraiser with a group of fabulous girls (including the director of the whole thing, H). The funds raised at this event (on August 26th) will all go to the Canadian Cystic Fibrosis Foundation. The event is already going to sell out, so we're pretty excited about that!
H and I are also hoping to devote the summer to raising awareness about Cystic Fibrosis and Organ Donation--that's where I come in. I'm trying to reach out to any media outlet available so we can spread the word. I also tried to simultaneously put up our website, which is very bare-bones right now, but then I realized... hey, I'm not superwoman. Maybe I do suffer from the prednisone side effect of mistakenly feeling godly. So we're hoping to find a designer (we may have found one, hoping she pulls through) that can just use my photoshop sketches and content to build the whole thing on Dreamweaver. I realize all this may sound like mumble jumble to some people, so I'll translate: Dreamweaver is a program that sucks the life out of me, so I want to pass it on to someone else.
I also suffer from hyperactive inspiration. I will literally be sitting quietly (well, never quietly, my mind is always racing or daydreaming or doing something wacky) when I am suddenly inspired and the ideas just start pouring out. Anyway, all this means is that I really enjoy working on this with H and a great group of girls. Girls who are equally as inspired and insane as I am, so I don't feel so bad in retrospect...
Stay tuned!
4 years ago
everyone LOVEs you on the committee! we are thinking of beomcing "sisters by choice" foundation, like the friends for life foundation!?!? what do you think!? that way we dont' have to stick to just the fashion show couture fashion for a cure found committee, but we can be sisters by choice foundation, and start marketing ourselves that way?!?!
glad you fgot the line pulled today! i'll have mine out soon tooa few months? haha...fingers crossed, and toes!