Since I'm on a roll here, I thought I would provide additional tidbits.

I went for my follow-up appointment at TGH last week and it went quite well. I really do like the fact that I arrived at 8:30 and I was home by 11:30. PFTs and a visit with the doctor all done before noon!

My PFTs are exactly the same (holding steady at .80). My weight is pretty stable also, which is always good to hear since I struggle with it quite a bit!

I was actually surprised to learn that I had not lost as many pounds as I had predicted. I have had a lot of digestive problems since last summer, which leaves me in pain, feeling ill, weak and unable to eat or do nightly feeds. Because of this problem, Dr. C (who I saw at TGH) has recommended I see the GI specialist. Apparently I should deal with this ongoing problem now because it can get even worse after transplant (I shudder at that thought).

In any case, I am hopeful that my situation can be helped. Maybe I'll just have to take additional medication or adjust my enzymes. It will be a relief not to suffer as often as I do now--I even had digestive problems at New Years and could barely finish one champagne flute. That's just wrong.

Everything else is just as it should be, time for the gut to follow suit.