I realize that, yet again, I have not written in a while, but I apparently have commitment problems. More importantly, I have been doing far too much running around to stop and give an update... is this a sign I should be hiring an assistant?
This update is prompted by my clinic visit yesterday, which went FAB. My bone density increased-- though in the words of the nutritionist they are still "pretty crappy"--but, I'll take it. Unfortunately I wasn't really aware I was due for my bone density scan and decided to wear a skirt to clinic... and I was also blessed to have an old man do my test. The test involves laying down and resting your legs on a raised block--you get the picture. It's a good thing I'm not bashful and I was wearing shorts-style (like shorts) undies...and I was avoiding eye contact.
Moving on, my weight didn't drop as dramatically as I thought. But my BMI is still hovering at a pathetic 17, even though my mother witnessed my beastly appetite yesterday (brie sandwich and sweet potato fries for lunch... prime rib for dinner). I'm really an anomaly.
The best part of clinic is my PFTs are finally back up to baseline, 28% (.81 L) from 25% after my last admission.
So, clinic was basically social hour for me yesterday. I saw two nurses that I haven't seen in a while and my physio therapist (not to mention Dr. S... but that was for a fleeting moment, since there wasn't really much to discuss and she had sicker patients to move on to).
One of the nurses A, who I haven't seen in years (except for in the hall), sat down with my for a while and did a pretty thorough review of how I've been since my last appointment in June. She actually has not sat down with me since I got sent for my transplant assessment one year ago (as of this week!) She shared a few stories about people who have been able to stay off the transplant list for 4 or 7 years after their initial assessment and it was pretty inspiring!
Maybe I can join their ranks?
I won't get ahead of myself...
I'm not quite sure why I've been so lucky so far (*knock on wood*), but I'd like to think that I can take some credit. I run a pretty tight ship! 3 nebs a day, 3 physios a day, lotsa walking (though I'm hoping to work on strength training), lots of support and good food, and always looking for new things to keep motivated and busy-busy (maybe sometimes too busy, which I'm learning to deal with). Now that I'm starting to sound like I'm going to go on a rant, let's dial it back.
What Have I Been Up To?
- The Fashion Show planning has been going well, everyone on the committee is great--H has really brought a great group together! Next Thursday is the BIG DAY. I've been working on a little bit of media stuff and our program for the night!
- My internship came to an end at Canadian Family at the end of July and I've been on vacation since then. I've been exploring Toronto a bit more and I took a three day trip to Montreal with a friend from Uni.
- I am also packing up my apartment, since I am moving this Sunday back to Brampton. It's been a slice Toronto!